"serving as a resource for individuals and their families affected by Parkinson's disease in the Carolinas, through education, community outreach and direct support"
August Newsletter - 2020
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Dear Friends,
We realize that COVID-19 has caused some disruptions and resulted in changes to our normal operations but we are working hard to move our mission forward.
We are excited to add Gentle Yoga outdoors at Southpark Mall with our wonderful instructor Aminta St. Onge. We will also begin offering virtual support groups via Zoom as well as an educational webinar series sponsored by our local partners!
In addition, we will host our annual Symposium virtually on Saturday, September 12th at 9:00 A.M.
This event will be streamed live through Zoom, and the recorded sessions will be made available on our PAC YouTube channel after the event.
Updates and further information will be made available on the PAC website, and social media as well as via email. To ensure you receive all information about upcoming events keep up with us on social media and keep an eye on email updates!
If you are seeking information or have specific needs, please feel free to reach out to us by calling
980-245-2786 or emailing pac@parkinsonassociation.org. Let’s get through this together.
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News
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COVID-19 Updates and Resources:
As cases rise across the Carolina's, widespread community panic has slowed. Many businesses are reopening and many people have returned to a new sense of normalcy. However, it is imperative to your health as well as the overall health of your community to stay safe, educated and aware of current trends.
Cases continue to rise in both North and South Carolina, we strongly recommend following CDC and WHO guidelines for safe practices especially in cases where social distancing may be difficult. Attached are links for safety practices and updated information on COVID-19.
The CDC has compiled information including data, cases, at risk communities, how to protect yourself and detecting symptoms. Information from the CDC regarding COVID-19 can be accessed here.
The World Health Organization has also compiled information for the general public as well community partners regarding safe practices, myth-busters and other media resources.
All information from WHO regarding COVID-19 can be accessed here.
We ask that you continue to follow government and professional recommendations regarding social distancing, face coverings, etc.
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Upcoming Events
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Parkinson Foundation presents Top Tips from Living with Parkinson's with Michael S. Okun, MD.
August 4 at 12PM
Other "PD Health @ Home" opportunities are listed to the right.
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Boston Scientific presents
Upgrading your Deep Brain Stimulation (DBS) System
Other opportunities through Boston Scientific are listed to the right.
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The Davis Phinney Foundation presents
Health Disparities and Parkinson's: Understanding the Issue
August 6th, 2020, at 2PM
Other opportunities through the Davis Phinney Foundation are to the right.
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The Micheal J. Fox Foundation presents,
Environments Role in Parkinson's Disease.
August 20, at 12PM
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Dance and Sing for PD classes are now online.
Check danceforparkinson.org or more information here!
For those of you in Charlotte who have attended our
Dance for Parkinson’s class with Gretchen Jax,
click here to see her most recently recorded class.
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Programs
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Disclaimers
Many meetings have been suspended until further notice, others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
Please refer to the highlighted links for contact information and updates regarding availability.
We ask that you practice caution when participating in exercise opportunities.
Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe location, move at your own pace and preferably with a partner either with a caregiver or video exercise with a friend!
Support Groups
PAC assists 90+ support groups in NC and SC. Click here to view our Support Group list for a group near you. If you have questions about a specific group please contact the Support Group leader.
Exercise
Opportunities
Find your way to Move It! Exercise has been proven to slow the progression of the disease. Click here to view the most current list of exercise classes throughout NC and SC.
Online Classes:
Gentle Yoga: Tuesdays and Thursdays at 2PM
Register by contacting Aminta St. Onge at amintasto@carolina.rr.com
RockSteady Boxing: streaming on YouTube
Dance for PD & Sing for PD: streaming here
Pilates for PD: streaming here
PWR! Moves: www.PWR4life.org
Invigorate Physical Therapy: www.invigoratept.com
LSVT -Speech Therapy: www.lsvtglobal.com
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Research Opportunities
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Dr. Vanessa Hinson, Director of the Parkinson’s Foundation Center
of Excellence at MUSC, recently spoke to the attendees at a support
group meeting about two ongoing trials in the Charleston area that require minimal or no visit to a medical facility.
The TOPAZ Study is a fracture prevention trial where the medication
will be administered during a one-time, 45-minute visit to your home.
The ROPAD trial is an observational (no treatment) genetic study conducted during a single visit to the “little green house”, the MUSC Movement Disorders research site away from the hospital. These are two important trials and offer two ways you can help to further
our knowledge of PD, with easy participation. Please contact Tim at sheehant@musc.edu for more information.
You do not have to be an MUSC patient to participate!
Duke is currently enrolling PD care partners into a distance
education phase of their Mindfulness-Based Stress Reduction and PD study, which will run on Tuesdays 2:00-3:30PM, July 14 until September 1. Mindfulness based stress reduction (MBSR) is a technique proven to reduce stress by helping you live in the moment. Last year Duke ran a study of MBSR for people with PD and PD care-partners, which showed encouraging
improvements to participants’ stress levels.
The next phase of this study,
a distance education offering of MBSR, has just begun. We hope to determine if distance education courses also improve stress and will
reduce barriers to participation by allowing people to take part anywhere
they have an internet connection or a phone line.
Sign up here:
https://redcap.duke.edu/redcap/surveys/
Access Code: 3H8KAPJMP
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Connect with us!
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Let's get social!
Are you a follower?
Are you a fan of PAC on Facebook? Do you follow us on Twitter? Stay informed and get the latest PD news and events. Click below on the social media outlets you already use and start getting social with PAC today!
Check out our NEW Instagram! @parkinsonscarolinas
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Call us toll-free
866.903.PARK (7275)
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