|
|
|
|
Programs, Events, & Resources for April 2022
APRIL IS PARKINSON'S AWARENESS MONTH!
Join us for several of the events listed here to help us raise awareness of Parkinson's disease.
New Staff Update!
We are excited to welcome Sydney McKinney as our new Associate Director. Sydney joined us in March and is very passionate about Parkinson’s disease following her grandfather’s journey. Sydney has a background in elementary STEM education. She brings strong project management, organizational skills, and online learning management which allowed her to excel at implementing technology in engaging and challenging ways. Sydney is looking forward to working with the Parkinson’s community and helping to grow the organization.
2nd Annual "TipToe thru the Tulips" Fundraiser April 13 - April 15
Support PAC's 2022 MoveIt! Walk Campaigns!
PAC's MoveIt! Walk Charlotte and MoveIt! Walk Myrtle Beach fundraising campaigns have officially launched! There will be Parkinson’s specific exhibitors, raffle prizes, live music, movement therapy demonstrations and more. We are excited to see everyone in person at both locations and look forward to fun and successful events!
8th Annual MoveIt! Walk Charlotte
Date & Time: Saturday, April 16th | 8:30 A.M. - 12:00 P.M.
Location: Symphony Park - 4400 Sharon Road Charlotte, NC 28211 (behind SouthPark Mall)
Campaign Page: https://give.parkinsonassociation.org/moveitwalkclt2022
|
|
4th Annual MoveIt! Walk Myrtle Beach
Date & Time: Saturday, May 14th | 8:30 A.M. - 12:00 P.M.
Location: Grand Park (1011 Crabtree Lane Myrtle Beach, SC 29577)
Campaign Page: https://give.parkinsonassociation.org/moveitwalkmb2022
|
|
Congratulations to our MoveIt! Walk Early Registration winners who will receive a FitBit!
Sue Northam – Myrtle Beach
Michele Cook - Charlotte
How You Can Help
* Register as an Individual Walker & Fundraise
* Form or Join a Walk Team & Fundraise
* Make a Donation toward the Event
Save the Date for this Upcoming Fundraiser!
|
|
Brittany Kearney, MBA, MA,CDP, CPG
Guest Speaker
Virtual Support Group
Date: Wednesday, April 6th at 2:00 PM
Topic: “The Benefits of PACE”
Facilitator: Brittany Kearney, MBA, MA, CDP, CPG
Community Outreach & Enrollment Director
To sign up, click on the green "REGISTER" button.
If prompted, please enter the following information:
Meeting ID: 886 1966 0301 | Passcode: 122946
Click here to learn more about PAC's Virtual Support Group.
If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.
|
|
Wellness Wednesday
Date: Wednesday, April 20 at 2:00 PM
Topic: Mindfulness & Meditation sessions
Facilitator: Aminta St Onge, 500 E-RYT, Senior Yoga Instructor & Therapist, & PAC's Gentle Yoga Instructor
To sign up, click on the green "REGISTER" button.
If prompted, please enter the following information:
Meeting ID: 842 1318 4823 | Passcode: 745792
Click here to learn more about PAC's Wellness Wednesday Webinars.
Aminta St Onge
Guest Speaker
* Our Wellness Wednesday webinar takes place the third Wednesday of every month. *
If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.
PAC's Free Programs!
Enjoy this video on Dance for Parkinson’s. We offer a free class in Charlotte every week. If you do not live in Charlotte, let us know if you would be interested in a virtual class. You can give us your feedback at pac@parkinsonassociation.org
Thank you!
Support for Individuals Living with PD & their Care Partners
We have numerous support groups across the Carolinas, if you would like to find out about one near you give us a call at 980-245-2786 and a trained staff member will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.
Movement Therapy
To join one of our in person classes or our virtual Gentle Yoga class, click here to see all locations, dates and times. You’ll also find our recently updated list of regional exercise classes in this same section of our website.
|
|
* Disclaimers *
As a result of the pandemic, many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.
|
|
New Support Groups
Brighton Gardens
Meeting Day & Time: 1st Thursday at 6:00 P.M.
Location: 6000 Park South Drive Charlotte, NC 28210
Contact Person: Jodi Valenstein,
704-643-1400 / jodi.valenstein@sunriseseniorliving.com* RSVP is strongly encouraged as COVID-19 protocols and social distancing are in place.
Ambriant at Austin Village (in the Parlor)
Meeting Day & Time: 3rd Wednesday at 2:00 P.M.
Location: 980 Chestnut Lane Matthews, NC 28104
Contact Person: Maria Hagadorn,
704-313-8743 / info@ambriantataustinvillage.org
* RSVP is strongly encouraged as COVID-19 protocols and social distancing are in place.
India Hook Methodist Church
Meeting Day & Time: 1st Thursday at 10:00 A.M.
Location: India Hook Methodist Church - 3300 Mount Gallant Road Rock Hill, SC 29732
Contact Person: Robert Karkoski, 814 -323-0014 / robertkarkoski@yahoo.com & Martha Karkoski, 814-323-0591 / marthakarkoski@yahoo.com
Local Community Programs
New Movement Therapy Program
Class Type: Rock Steady Boxing
Date & Time: Monday, Wednesday, & Friday at 9:30 A.M. & 10:30 A.M.
Location: Lake Hickory Muay Thai - 3204 Highway 127 S, Suite 101 Hickory, NC 28601
Telephone Number: 704-657-1080
|
|
Available National Programs
|
|
Pedaling for Parkinson's
Live Class Schedule:
M/W/F with Tom: 11:30 AM CT via Zoom
T/TH/SA with John: 8:00 AM CT via Zoom
To join a class,
Stanford Neurosciences Supportive Care Program Virtual Exercise Classes
To access the exercise class schedule, click here.
Facebook Live Parkinson's Speech Exercises
Monday - Friday, 11:00 AM
Tuesday, 7:00 PM
To learn more,
Smart Patients
Parkinson's Disease Community
In partnership with
American Parkinson Disease Association (ADPA)
For more information,
|
|
Parkinson's Community News
Diet, Agricultural Chemicals May Affect Disease Risk
People who consume more coffee and fish are less likely to develop Parkinson’s disease, according to a new study from Italy.
Results also indicate that exposure to agricultural chemicals may increase the risk of Parkinson’s.
|
|
"From attachable plate guards to ergonomically designed grabber tools, there are lots of products that might make home living that little bit easier. We’ve put together a room-by-room roundup of some of the most useful items for people with Parkinson’s"
12 of the Best Domestic Tools for People with Parkinson's
|
|
Excessive Sweating Can Affect Patients With Dyskinesia, Anxiety
"Excessive sweating, known as hyperhidrosis, is fairly common among people with Parkinson’s and can worsen as the disease progresses, a three-year study of patients in early disease stages reported.
Researchers also observed that hyperhidrosis was associated with motor symptoms like dyskinesia (uncontrollable movements) and often accompanied non-motor symptoms like sexual dysfunction and anxiety."
|
|
"Combining a 12-week program of virtual reality (VR) training and motor imagery exercises with standard physical therapy (PT) significantly lessened motor symptoms — including tremors, slow movements (bradykinesia), and postural instability — among people with Parkinson’s disease, according to a recent study.
“To the best of our knowledge, this is the first trial to show the effects of … virtual games and [motor imagery] along with routine PT on the components of motor function such as tremors, posture, gait, body bradykinesia, and postural instability in [Parkinson’s disease] patients,” the researchers wrote."
Virtual Reality and Motor Imagery with PT Ease Motor Symptoms
|
|
Mental Health Concerns in Advanced PD - Psychosis and Behavioral Problems
"We will examine each of the mental health symptoms that can affect those with advanced PD and discuss non-medication as well as medication management approaches. The rest of this blog will be dedicated to psychosis and behavior problems."
|
|
"When UK-based campaigner Vicki Dillon was diagnosed with Parkinson’s disease, she felt embarrassed about what she, at the time, viewed as “an old person’s disease that didn’t fit me or what I represented”.
“I just wanted to be able to take a pill to make it all go away,” she tells Italian-based neurologist Dr Angelo Antonini in the latest episode of the Parkinson’s Life podcast."
Upcoming Events
The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of April.
For more information and to register for any of these upcoming sessions, click here.
|
|
MUSC Health presents: "Lunch and Learn:
Caregiver Class"
with guest speaker Lilia Lovera, M.D.
Assistant Professor of Neurology
Movement Disorders Program
Medical University of South Carolina
Thursday, April 7th at 12:00 PM
To register, click here.
|
|
Pacific Neuroscience Institute presents:
"Everything Parkinson’s Webinar"
Monday, April 4th at 12:00 PM
To join, click here. Use the following meeting credentials if prompted:
Webinar ID: 894 5881 7673 | Passcode: 695469
|
|
The Michael J. Fox Foundation presents:
"New to Parkinson's? Steps to Take Today"
Thursday, April 21st at 12:00 P.M.
To register, click here.
|
|
Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.
Local Studies & Trials
Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)
The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time.
You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.
If you have any concerns about the study, you can contact:
PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu.
|
|
Acute Effects of Exercise on Autonomic Function
in Parkinson's Disease (PD)
Contacts:
- Lizzie Gamwell, gamwellhe@appstate.edu
- Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
|
|
LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).
If you are interested in learning more about Project Euphonia, click here.
Please contact project.euphonia@lsvtglobal.com with any questions.
|
|
The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete.
To access the survey, click here.
For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu.
|
|
Wake Forest Baptist Health is conducting a study of light therapy in patients with Parkinson's Disease to improve sleep.
To learn more about this study, click here.
For more information, contact Study Coordinator: Carolina Burgos Aguilar at caguilar@wakehealth.edu or 336-713-2603.
|
|
The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls.
For more information, contact either of the following individuals:
- Sandra Wilson, Research Coordinator - wilsosan@musc.edu 843-792-4616
- Lisa Heidelberg, Research Coordinator - heidelbe@musc.edu 843-876-0829
If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu.
PAC's Toll-Free Resource Line is here to Help!
Staff Answered Toll-Free Resource Line
- Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
- You can call for PD related questions, resources, & referrals.
- You can learn about PAC's cost-free programs.
- Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.
For more information, click on the green "LEARN MORE" button.
Support PAC's Cost-Free Programs!
|
|
How You Can Support PAC
Volunteer with PAC
There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.
- Board Member
- Committee Member
- Program Volunteer
- Event Volunteer
For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.
Make Your Mark on Our Local Parkinson's Community!
|
|
Support PAC When You Shop on Amazon!
You shop. Amazon gives.
Consider selecting Parkinson Association of the Carolinas as your nonprofit on AmazonSmile, and Amazon will donate a portion of your purchase to PAC. Click here to get started.
Follow PAC on Social Media!
|
Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*
*{{Unsubscribe}}*