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Programs, Events, & Resources for August 2022

REGISTER BY CLICKING HERE

Or visit bit.ly/3cfmbRP for registration. 

Have Questions? Contact Ke'yana Hatfield at khatfield@parkinsonassociation.org

 
Register

Virtual Support Group

 

Date: Wednesday, August 3rd at 2:00 PM

 

Topic: Managing Parkinson's with Occupational and Physical Therapy and Speech Language Pathology

 

Click here to learn more about PAC's Virtual Support Group.

Katherine DeWitt, OTR/L, CKTP, CSRS

 

Katherine DeWitt graduated with her Master's degree in Occupational Science from UNC-Chapel Hill in 2011. Katherine has experience working with clients in the inpatient rehabilitation and outpatient therapy settings. Katherine has completed the Interdisciplinary Team Training for Parkinson's (ATTP) through the Parkinson's Foundation as well as the Parkinson's Wellness Recovery (PWR!) certification, and she has a passion for empowering clients to live independent and meaningful lives. In her free time, she enjoys being outside on the water and spending time with her husband and three dogs. 

Christie Grogan, SLP

 

Christie Grogan received her Bachelor's and Master's degrees in Communication Sciences and Disorders from Radford University. Christie has 21 years of experience covering a variety of settings including inpatient rehabilitation, day rehabilitation, acute care, outpatient rehabilitation, home health, and skilled nursing. Christie attended Allied Team Training with Parkinson's Foundation and is also certified in SPEAK OUT! and LSVT LOUD. Christie has a strong passion for helping people maximize their communication to meet needs of their home, work, and community. In her free time, she enjoys spending time with her husband and two sons.

Morgan Newton, PT, DPT

 

Morgan Newton graduated with her Doctor of Physical therapy from Campbell University in 2018. She treats a variety of neurological conditions in the outpatient setting and is a part of the Parkinson's team in Pineville. Morgan is LVST BIG certified and uses these techniques in each session with individualized education for carryover at home. Morgan has a passion for helping people meet their goals and improve their independence and safety in both the home and community. In her free time, Morgan enjoys travelling to see new places and spend time with her two Golden Retrievers, Marley and Griffin.

 

 

Michelle Hill, M.S. CCC-SLP

Register

Wellness Wednesday

 

Date: Wednesday, August 17th at 2:00 PM

 

Topic: Adaptive Communication Techniques & Assistive Devices

 

Michelle Hill is a licensed speech language pathologist who lives in Concord, NC.  She graduated from Nazareth College of Rochester, in 2011, with her masters of science degree in speech language pathology, and has been working with adults ever since.  Michelle chose to specialize in Parkinson's Disease because of her grandfather, who was diagnosed with PD in the 1990s.  She is a certified SPEAK OUT! provider, a 2 time ASHA ACE award recipient, is the education chair for the Cabarrus Business Network, and a clinical supervisor for graduate students in local speech language pathology programs.  Michelle is also the owner of Resurgence Neuro Rehab, an outpatient, speech therapy clinic in Concord.

 

Click here to learn more about PAC's Wellness Wednesday Webinars.

If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.

PAC's Free Programs! 

PAC provides a FREE Pedaling for Parkinson's class to the Parkinson’s community on Tuesdays & Thursdays, 11:45 A.M. at Cape Fear Fitness (5130 Southport-Supply Rd, SE #103 Southport, NC 28461)

 

You can register by calling Cape Fear Fitness at 910-457-0085. Registration is not required, but encouraged as space is limited.

Instructor Beth Serpeca

Support for Individuals Living with PD & their Care Partners

 

We have numerous support groups across the Carolinas, if you would like to find out about one near you give us a call at 980-245-2786 and a trained staff member will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.

 

Movement Therapy

 

To join one of our in person classes or our virtual Gentle Yoga class, click here to see all locations, dates and times. You’ll also find our recently updated list of regional exercise classes in this same section of our website. 

 

* Disclaimers *

 

As a result of the pandemic, many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.

 

We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.

 

New Volunteer Spotlight!

Meet our Newest Volunteer Melissa!!

Melissa is our newest member of our Marketing and Communications Committee!

 

Melissa Miller pursued her education at the University of North Carolina at Charlotte. She graduated Magna Cum Laude with a degree in Finance in 2010. Melissa is an Advisor with Fulcrum Wealth Advisors and enjoys bringing financial clarity to individuals and businesses.

 

Melissa is Series 7 and 66 licensed and also licensed in life, health and long-term care insurance. Her focus is helping people understand their financial clarity and helping them make the best decisions with the resources they have available.

 

In her spare time, Melissa enjoys spending time with her husband, Alex, and their Goldendoodle, Moose. She loves raising awareness for local groups, like the Parkinson’s Association of the Carolinas. Her close family member was diagnosed in the 2000s and she cares deeply about supporting others who may be struggling with this disease. Traveling and playing guitar are a huge part of her life as well.

 

If you would like to know more information on joining a committee contact Sydney McKinney at smckinney@parkinsonassociation.org

Local Community Programs

 

Parkinsons PWR!Moves Exercise Class

 

Wednesdays at 10am - First Class is FREE

 

PWR!Moves Excerises are:

- Research driven to STOP THE PROGRESSION OF PARKINSON'S DISEASE

- Specific Methods in guided cardio training, strength and functional training

- Specific exercises that help maintain and restore skills that have deteriorated and can interfere with everyday movements

- Targeted at multiple Parkinson's Disease symptoms

- Adaptable for all levels of disease severity

 

Located at: 4801 Chastain Ave, Suite 194, Charlotte, NC 28217

www.BTIrehab.com

For questions call 980-272-7105 

 

 

Rock Steady Boxing Exercise Class

 

Mondays - Thursdays 1:00-2:15

 

Rock Steady Boxing:

- Is rigorous and intended to extend the perceived capabilities of the participant

- Conditions participant for optimal agility, speed, muscular endurance, accuracy, hand-eye coordination, footwork, and strength

 

Located at: Levine Jewish Community Center, 5007  Providence Rd, Charlotte, NC 28226 

Contact JCC at: https://www.charlottejcc.org/wellness-fitness/rock-steady-boxing/

Available National Programs

 
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Dance and Sing for PD

 

Classes are now being held online.

 

To learn more,

click here.

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Rock Steady Boxing Headquarters

 

Offers classes online via YouTube!

 

To learn more, click here.

Pedaling for Parkinson's

 

Live Class Schedule:

 

M/W/F with Tom: 11:30 AM CT via Zoom

 

T/TH/SA with John: 8:00 AM  CT via Zoom

 

To join a class,

click here. 

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Poe for PD

 

Offers online Pilates classes!

 

For more information, click here.

Davis Phinney Foundation

Parkinson’s Exercise Essentials

 

To access the video content,

click here.

Stanford Neurosciences Supportive Care Program Virtual Exercise Classes 

 

To access the exercise class schedule, click here.

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Facebook Live Parkinson's Speech Exercises

 

Monday - Friday, 11:00 AM

To learn more,

click here.

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World Parkinson Coalition

 

For articles, webinars, etc., 

visit worldpdcoalition.org.

Smart Patients

Parkinson's Disease Community

In partnership with

American Parkinson Disease Association (ADPA)

 

For more information,

click here.

 

Parkinson's Community News

 

New Method Detects Degeneration in Brain Region Key to Movement

Scientists have developed a new technique that can detect Parkinson’s disease-related degeneration in a part of the brain, called the striatum, that’s key to movement.

This type of analysis — which can be done for individuals with early-stage Parkinson’s — will allow researchers to distinguish different subgroups within this patient population, and may eventually lead to the development of personalized treatment.

 

“Our method provides a unique insight on aging- and disease-related local changes in the striatal [brain] tissue,” the researchers wrote. “Future applications should benefit … research and personalized medicine.”

 

Continue Reading On Parkinson's News Today

 
 

Meditation Practice Helps Me to Self-manage Parkinson’s Disease

My battle with Parkinson’s disease (PD) is getting more difficult. I have more pain, more motor and nonmotor problems, and more difficulty processing emotions. The stages of Parkinson’s are defined by the Parkinson’s Foundation, yet everyone is different in how they progress and at what rate. I feel I’m working through the progression well, managing everything (most of the time) partly because of my meditation practice.

 

Many folks view the term meditation with an image of a guru sitting cross-legged on a mountaintop or in a cave. Instead, I think of meditation as brain training. With Parkinson’s, I get the added benefit of improved physical functioning.

 

Continue Reading On Parkinson's News Today

 

 

 Despite significant advances in our knowledge into the causes and mechanisms of neurodegeneration leading to the development of Parkinson’s disease and the availability of sophisticated molecular determinations and imaging techniques, every time we are faced for the first time with a patient presenting with parkinsonian symptomatology, it still remains a diagnostic challenge. Even more so, if we pretend to prognosticate with a certain degree of accuracy the future development of Parkinson’s disease (PD) in the so called “at risk population”.

 

 

Continue Reading on WPC Blog

DIAGNOSTIC CHALLENGES AND PITFALLS IN PARKINSON’S DISEASE

Upcoming Events

The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of August.

 

For more information and to register for any of these upcoming sessions, click here.

 

MUSC Health presents: Mood and Parkinson's Disease; Amanda Hare, DNP

Medical Director of Deep Brain Stimulation Program
Medical University of South Carolina

 

Thursday, August 4th at 12:00 PM

 

To register, click here. 

 
 
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Pacific Neuroscience Institute presents:

"Everything Parkinson’s Webinar"

 

Monday, August 1st at 12:00 PM

 

To join, click here. Use the following meeting credentials if prompted:

Webinar ID: 821 8048 1494

 

Topic: TBD

Thursday, August 15th at 12:00 P.M.

 

Click here to learn more.

 

Topic: Depression, Anxiety, Mood, and Parkinson's

with Joanne Hamilton, PhD

 

Tuesday, August 9th at  4:00 P.M EDT.

 

To register for this, click here. 

 

Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.

Local Studies & Trials

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Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)

 

The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time.

 

You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.

 

If you have any concerns about the study, you can contact:

PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu.

 

Acute Effects of Exercise on Autonomic Function

in Parkinson's Disease (PD)

 

Contacts:

  • Lizzie Gamwell, gamwellhe@appstate.edu
  • Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
 

LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).

 

If you are interested in learning more about Project Euphonia, click here.

 

Please contact project.euphonia@lsvtglobal.com with any questions.

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View the Full Flyer

 

The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete.

 

To access the survey, click here.

 

For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu.

 

Wake Forest Baptist Health is conducting a study of light therapy in patients with Parkinson's Disease to improve sleep.

 

To learn more about this study, click here.

 

For more information, contact Study Coordinator: Carolina Burgos Aguilar at caguilar@wakehealth.edu or 336-713-2603.

 

The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls. 

 

For more information, contact either of the following individuals:

  • Sandra Wilson, Research Coordinator - wilsosan@musc.edu 843-792-4616
  • Lisa Heidelberg, Research Coordinator - heidelbe@musc.edu 843-876-0829 

If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu.

PAC's Toll-Free Resource Line is here to Help!

LEARN MORE

Staff Answered Toll-Free Resource Line

  • Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
  • You can call for PD related questions, resources, & referrals.
  • You can learn about PAC's cost-free programs.
  • Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.

For more information, click on the green "LEARN MORE" button.

Support PAC's Cost-Free Programs!

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How You Can Support PAC

Volunteer with PAC

 

There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.

  • Board Member
  • Committee Member
  • Program Volunteer
  • Event Volunteer

For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.

Make Your Mark on Our Local Parkinson's Community!

VOLUNTEER
 

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