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Programs, Events, & Resources for October 2023

 
 

PAC's Virtual Programming

Save the Dates for these Upcoming Webinars

 

PAC is offering a Wealth Management Series presented by Melissa Miller, Financial Advisor at Fulcrum Wealth Advisors, LLC and Soraya Martial-Wright at The Autonomy Group, PC. Reserve your spot today!

 

October 5, 2023 at 6:00 PM - Asset Protection

October 26, 2023 at 6:00 PM - Estate Planning

REGISTER
VIEW PREVIOUS WEBINARS
 
REGISTER
 

Virtual Support Group

Date:  Wednesday, October 4th, at 2:00pm 

 

Topic: "The Surprising Relationship Between The Inner Ear and Fall Risk"

 

Presenter: Madison Levine, Founder and Board Certified Hearing Instrument Specialist, Levine Hearing 

 

Click here to learn more about PAC's Virtual Support Group Sessions

REGISTER
 

Wellness Wednesday

Save the date for this month's Wellness Wednesday virtual webinar on October 18th at 2:00 PM. Be on the lookout for more information about this session. 

 

Click here to learn more about PAC's Wellness Wednesday Webinars.

 

If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.

 

Local Community Programs

Support for Individuals Living with PD & their Care Partners

 

We have numerous support groups across the Carolinas. If you would like to find out about one near you give us a call at 980-245-2786 and a trained care advisor will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.

Movement Therapy Exercise

 

There are numerous movement therapy classes across the Carolinas. To join one of our in person classes or our virtual Yoga for Parkinson's class, click here to see all locations, dates and times. For more information on classes in your region, call our office at (980) 245-2786.  

 

* Disclaimers *

 

We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.

 

Join the Parkinson's Community Support Group in Hickory!

 

On October 8th, guest speaker, Dr. Christine Yu, a Pharmacist with Walgreens, will be speaking to the group about different medicines to reduce symptoms of Parkinson's. 

 

Date: Sunday, October 8th, 3:30 PM - 4:30 PM

 

Location: Hickory Foundation YMCA, 701 1st St NW, Hickory, NC 28601

 

On October 16th, guest speaker, Dr. Sanjay Iyer, Medical Director and Movement Disorder Neurologist for the Charlotte member and Movement Organization will be sharing to the group about a medication used to treat symptoms of Parkinson's. 

 

Date: Monday, October 16th, 2:00 PM - 3:00 PM

 

Location: Hickory Foundation YMCA, 701 1st St NW, Hickory, NC 28601

 

 
 
 

NEW RESOURCE AVAILABLE!

GET BOOK

Mattie Ablitz, Occupational Therapist and Owner at Threshold Therapeutics, has 

officially published and released a new book, entitled "A Therapist's Guide to Caregiving." This book is a textbook-style manual designed for both professional caregivers, and family members providing care for their loved ones at home. The book provides comprehensive and detailed instructions (187 pages), along with pictures outlining the the process for assisting with:


- Assistive Devices
- Functional Mobility
- Transfers
- Bed Mobility
- Self-Care (grooming, toileting, dressing, bathing, and bed-level care)
- Strategies for working with clients with Dementia
- Transfer and Lift Devices (sliding boards, hoyer lifts, sit-to-stand lifts)
- Fall Prevention and Managing Falls

 

Available National Programs

 
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Dance and Sing for PD

 

Classes are now being held online.

 

To learn more,

click here.

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Rock Steady Boxing Headquarters

 

Offers classes online via YouTube!

 

To learn more, click here.

Pedaling for Parkinson's

 

Live Class Schedule:

 

M/W/F with Tom: 11:30 AM CT via Zoom

 

T/TH/SA with John: 8:00 AM  CT via Zoom

 

To join a class,

click here. 

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Poe for PD

 

Offers online Pilates classes!

 

For more information, click here.

 

Davis Phinney Foundation

Parkinson’s Exercise Essentials

 

To access the video content,

click here.

Stanford Neurosciences Supportive Care Program Virtual Exercise Classes 

 

To access the exercise class schedule, click here.

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Facebook Live Parkinson's Speech Exercises

 

Monday - Friday, 11:00 AM

To learn more,

click here.

 
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World Parkinson Coalition

 

For articles, webinars, etc., 

visit worldpdcoalition.org.

Smart Patients

Parkinson's Disease Community

In partnership with

American Parkinson Disease Association (ADPA)

 

For more information,

click here.

 

Parkinson's Community News

 

How to Manage Bladder and Common Urinary Issues in Parkinson's

Though bladder problems are one of the most common challenges in Parkinson’s disease (PD), they are rarely discussed with a doctor. Parkinson’s can impact bladder function in many ways, including urinary urgency, leakage and urinary tract infections. Untreated, some urinary issues can lead to cognitive problems. Discover why it’s important to discuss urinary difficulties with your healthcare provider and learn about the treatments that address challenges and improve quality of life.

 

Continue Reading On Parkinson's Foundation.

 

Parkinson’s disease (PD) affects everyone differently and changes over time. Symptoms can be hard to predict and may fluctuate depending on factors like medication, stress and sleep. The pressure to adapt to changing physical abilities, as well as mood symptoms, such as depression, anxiety and apathy, may be overwhelming at times and lead to feelings of hopelessness. Whether you feel this way and are searching for a way forward or just looking to boost your overall well-being, there are everyday strategies that can help.

 

Continue Reading On Parkinson's Foundation

Building Well-Being Practices into Everyday Life with Parkinson's

 

Could Changes in Gut Bacteria Contribute to the Development of Parkinson's Disease in those with Genetic Risk?

Mutations in the GBA1 gene are one of the most common genetic risk factors associated with Parkinson's disease (PD). However, it's important to note that not all people with GBA1 mutations will necessarily develop PD. Furthermore, if they do, the onset may occur at different ages and with different clinical presentations. This variability highlights the critical need to identify additional factors, both environmental and genetic, that may influence the likelihood of developing PD in individuals with GBA1 mutations.

 

Continue Reading On World Parkinson Coalition

 

Regional and National Programming

 

Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.

 

The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of October.

 

For more information and to register for any of these upcoming sessions, click here.

 

MUSC Health presents: "Resources for Movement Disorders Pateints"

 

Thursday, October 5th at 12:00 P.M.

 

To register, click here.

 
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Pacific Neuroscience Institute presents:

"Everything Parkinson’s Webinar"

 

Monday,October 2nd at 12:00 P.M.

 

To join, click here. Use the following meeting credentials if prompted:

Webinar ID: 821 8048 1494

 

Topic: "Estate Planning Tips for Increasing Your Financial Wellness" (Replay)

 

Thursday, October 12th at 12:00 P.M.

To register, Click here 

 

Topic: "DEI: What Aging Service Providers Need to Know" 

 

Wednesday, October 18th at 9:30 A.M.

 

To register, click here

Local Studies & Trials

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Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)

 

The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this  study will require around 30-45 minutes of your time.

 

You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.

 

If you have any concerns about the study, you can contact:

PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu.

 

Acute Effects of Exercise on Autonomic Function

in Parkinson's Disease (PD)

 

Contacts:

  • Lizzie Gamwell, gamwellhe@appstate.edu
  • Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
 

LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).

 

If you are interested in learning more about Project Euphonia, click here.

 

Please contact project.euphonia@lsvtglobal.com with any questions.

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View the Full Flyer

 

The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete.

 

To access the survey, click here.

 

For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu.

 

The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls. 

 

For more information, contact either of the following individuals:

  • Sandra Wilson, Research Coordinator - wilsosan@musc.edu 843-792-4616
  • Lisa Heidelberg, Research Coordinator - heidelbe@musc.edu 843-876-0829 

If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu.

 

Wake Forest Baptist Health is conducting a study that studies the effects of a wearable device on Parkinson's disease. 

 

To learn more about this study, click here.

 

For more information, contact Study Coordinator: Melanie Wilder at mwilder@wakehealth.edu or 336-716-1239.

 

PAC's Toll-Free Resource Line is here to Help!

LEARN MORE

Free Resource Line Answered by a Care Advisor

  • Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
  • You can call for PD related questions, resources, & referrals.
  • You can learn about PAC's cost-free programs.
  • Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.

For more information, click on the green "LEARN MORE" button.

 

How You Can Support PAC

Support PAC's Cost-Free Programs!

PAC offers free educational programs to the PD communities in the Carolinas! Consider making a donation so we can keep our programs cost-free to you!

DONATE
 

Volunteer with PAC

 

There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.

  • Board Member
  • Committee Member
  • Program Volunteer
  • Event Volunteer

For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.

Make Your Mark on Our Local Parkinson's Community!

VOLUNTEER
 

Follow PAC on Social Media!

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Did you know about our Motivational Mondays and Fact Fridays?

Every Monday and Friday we post motivational quotes and facts about Parkinson's disease on our Instagram and Facebook Stories.

 

We also post about some of our exercise programs and support groups across North and South Carolina on Wednesdays for our Spotlight Wednesdays. Each story stays up for 24 hours before disappearing the next day!

 

Where can I view Instagram Stories?

To view PAC's stories, just tap on our profile photo - it's a red and green tulip! If you like our story, you can send us a "heart" in the bottom right-hand corner! 

 

Where can I view Facebook Stories?

Similar to Instagram Stories, content shared to stories will appear at the top of the Facebook News Feed. To view a story, users simply tap the Parkinson Association Logo circle at the top of the app (if it has a blue circle around it). While viewing a story, users can also reply with a direct message to let us know if you liked our story!

 

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