| Programs, Events, & Resources for August 2023 |
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**NEW MAILING ADDRESS**
Effective July 15, 2023, our mailing address changed to PO Box 1465 Matthews, NC 28106. Please be sure to note this change of address on all future mailings. Our office is still located at 2101 Sardis Road, Suite 102, Charlotte, NC 28227. |
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Thank you for joining us on Saturday, July 22, 2023 for our first PD 101 for the Newly Diagnosed session—We had a great turnout! We received such positive feedback from our attendees. One attendee even added "I learned more about myself for myself with Parkinson’s.” If you were unable to attend this session, our next session is August 19, 2023. More information is available below! |
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**FREE ASSISTIVE DEVICES AVAILABLE FOR PICKUP** |
These gently used items were donated to PAC for the local Parkinson's community. If you are interested in any of the following items, contact Ke'yana Hatfield at khatfield@parkinsonassociation.org or call our office at (980) 245-2786. |
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- 1 x Upright Rollator - Walker with Basket
- 1 x U-Step Walking Stabilizer with Cueing Light
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| - 1 x Car standing aid and emergency tool
- 1 x Wheelchair
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PAC's Virtual Programming |
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Save the Dates for these Upcoming Programs
Starting next month, PAC is offering a Wealth Management Series presented by Melissa Miller, Financial Advisor at Fulcrum Wealth Advisors, LLC and Soraya Martial-Wright at The Autonomy Group, PC. Be on the lookout, registration is coming soon!
August 24, 2023 at 6:00 PM - Behavioral Finance September 14, 2023 at 6:00 PM- Financial Planning
October 5, 2023 at 6:00 PM - Asset Protection October 26, 2023 at 6:00 PM - Estate Planning |
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| Topic: "Making Moves More Manageable"
Join us to learn more about downsizing. Date: Wednesday, August 2nd at 2:00 PM Speaker: Becky Travenski, Client Relations Manager, Transitions With Care
Click here to learn more about PAC's Virtual Support Group sessions. |
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Save the date for this month's Wellness Wednesday virtual webinar. Be on the lookout for more information about this session. Click here to learn more about PAC's Wellness Wednesday Webinars. |
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If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you. |
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Support for Individuals Living with PD & their Care Partners
We have numerous support groups across the Carolinas. If you would like to find out about one near you give us a call at 980-245-2786 and a trained care advisor will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program. |
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Movement Therapy Exercise
To join one of our in person classes or our virtual Yoga for Parkinson's class, click here to see all locations, dates and times. You’ll also find our list of regional exercise classes in this same section of our website.
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* Disclaimers *
We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor. |
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Join the Parkinson's Community Support Group in Hickory! This month, guest speaker, Jared Skinner, Ph.D., from Appalachian State University speaking to the group about current Parkinson's research studies.
Date: Sunday, August 13, 2023, 3:30 PM - 4:30 PM Location: Hickory Foundation YMCA, 701 1st St NW, Hickory, NC 28601 To learn more about this support group, contact Carrie Craymer at carriecraymer7@gmail.com. |
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Available National Programs |
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Dance and Sing for PD Classes are now being held online. To learn more,
click here. |
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Rock Steady Boxing Headquarters Offers classes online via YouTube! To learn more, click here. |
| Pedaling for Parkinson's Live Class Schedule: M/W/F with Tom: 11:30 AM CT via Zoom T/TH/SA with John: 8:00 AM CT via Zoom To join a class, click here. |
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Poe for PD Offers online Pilates classes! For more information, click here. |
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Davis Phinney Foundation Parkinson’s Exercise Essentials
To access the video content, click here. |
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Stanford Neurosciences Supportive Care Program Virtual Exercise Classes
To access the exercise class schedule, click here. |
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Facebook Live Parkinson's Speech Exercises Monday - Friday, 11:00 AM
To learn more,
click here.
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| Smart Patients Parkinson's Disease Community In partnership with American Parkinson Disease Association (ADPA) For more information,
click here. |
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Parkinson's Community News |
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What are ‘Off’ Periods – and How Can They Impact People with Parkinson’s disease? |
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What are ‘off’ periods, what causes them – and why is raising awareness of them so important? Dr Lazzaro di Biase and advanced nurse practitioner Brian Magennis share their insights
“Management of Parkinson’s is really about symptom control,” says Brian Magennis, an advanced nurse practitioner based at Mater Misericordiae Hospital in Dublin, Ireland. His deep knowledge of Parkinson’s comes not only from his patients, but also his father, who lives with the condition.
Continue Reading On Parkinson's Life |
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| Distinguishing Between Parkinson's and Parkinsonism: Ways You Can Help With Your Diagnosis |
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10 Ways to Support a Loved One with Parkinson’s |
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When someone you love is diagnosed with Parkinson’s disease (PD), many emotions and questions may arise. What can I do to help? How can I provide support if I’m not the care partner or live nearby? Read on for 10 practical tips about how to show your support to a loved one living with PD.
Continue Reading On Parkinson's Foundation |
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Regional and National Programming |
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Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details. |
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| The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of August.
For more information and to register for any of these upcoming sessions, click here.
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MUSC Health presents: "GI and Parkinson's Disease" Thursday, August 3rd at 12:00 P.M.
To register, click here. |
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| Pacific Neuroscience Institute presents:
"Everything Parkinson’s Webinar" Monday, August 7th at 12:00 P.M.
To join, click here. Use the following meeting credentials if prompted:
Webinar ID: 821 8048 1494 |
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Topic: "Your Legacy: Estate Planning, Philanthropy and Parkinson's"
Thursday, August 9th at 12:00 P.M.
Click here to learn more. |
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| Topic: "Age-Friendly Communities: Walkability & Pedestrian Safety" Tuesday, August 23rd at 10:00 A.M.
To register, click here |
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| Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)
The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time.
You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity. If you have any concerns about the study, you can contact:
PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu. |
Acute Effects of Exercise on Autonomic Function in Parkinson's Disease (PD)
Contacts: - Lizzie Gamwell, gamwellhe@appstate.edu
- Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
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LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices). If you are interested in learning more about Project Euphonia, click here. Please contact project.euphonia@lsvtglobal.com with any questions. |
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The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete. To access the survey, click here. For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu. |
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The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls.
For more information, contact either of the following individuals:
If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu. |
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| Wake Forest Baptist Health is conducting a study that studies the effects of a wearable device on Parkinson's disease. To learn more about this study, click here.
For more information, contact Study Coordinator: Melanie Wilder at mwilder@wakehealth.edu or 336-716-1239. |
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PAC's Toll-Free Resource Line is here to Help! |
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Free Resource Line Answered by a Care Advisor - Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
- You can call for PD related questions, resources, & referrals.
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You can learn about PAC's cost-free programs.
- Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.
For more information, click on the green "LEARN MORE" button. |
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Support PAC's Cost-Free Programs! |
PAC offers free educational programs to the PD communities in the Carolinas! Consider making a donation so we can keep our programs cost-free to you! |
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Volunteer with PAC
There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities. - Board Member
- Committee Member
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Program Volunteer
- Event Volunteer
For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.
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| Make Your Mark on Our Local Parkinson's Community! |
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Follow PAC on Social Media! |
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Did you know about our Motivational Mondays and Fact Fridays? |
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Every Monday and Friday we post motivational quotes and facts about Parkinson's disease on our Instagram and Facebook Stories.
We also post about some of our exercise programs and support groups across North and South Carolina on Wednesdays for our Spotlight Wednesdays. Each story stays up for 24 hours before disappearing the next day!
Where can I view Instagram Stories? To view PAC's stories, just tap on our profile photo - it's a red and green tulip! If you like our story, you can send us a "heart" in the bottom right-hand corner! Where can I view Facebook Stories?
Similar to Instagram Stories, content shared to stories will appear at the top of the Facebook News Feed. To view a story, users simply tap the Parkinson Association Logo circle at the top of the app (if it has a blue circle around it). While viewing a story, users can also reply with a direct message to let us know if you liked our story! |
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