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Programs, Events, & Resources for February 2024

 
 
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Join us on April 30, 2024 to experience the play “What I Didn’t Say: A Journey Through Parkinson’s”.

 

PD patients, caregivers, medical professionals, and everyone in between will relate to this profoundly honest story about the staying power of true love as they experience the highs and lows of one couple’s journey through Parkinson’s. After the 50-minute performance, you are invited to join in a discussion about Parkinson’s, the play, and what resources are available in your area.

 
 

FUNdraising Events for PAC

Bad Daddies Fundraising Concert 

February 24th, 2024

8:00 PM-11:00 PM

Visulite Theatre, 1615 Elizabeth Ave, Charlotte, NC 28204

Save the date  for this energetic event! PAC is having a concert to raise money for our mission.  

 

Tickets are on sale now through Givebutter!

 

"The Bad Daddies began to work the circuit of backyard birthday parties in South Charlotte. Those initial events evolved into galas, fundraisers, weddings and rehearsal dinners, holiday parties, and now, 15+ years later, 50th birthday parties. They have performed from Charlotte to Nashville and towns across the Southeast. Their musical style is like a massive Shuffle Playlist performed live with sweet harmonies!"

SECURE TICKETS
 

MoveIt! Walk Charlotte

 

Our 10th annual MoveIt! Walk Charlotte, NC will be Saturday, May 18, 2024 at Symphony Park. For those of you who haven't attended before you know what a great event it is with live music, yoga, many exhibitors, raffle and more. Join us this year for a great day of awareness and fun!

 

 

REGISTER FOR
CHARLOTTE WALK

 MoveIt! Walk to Wilmington

 

We are excited to bring back our MoveIt! Walk to Wilmington, NC on Saturday, May 18, 2024 at Longleaf Park!!  For those of you who haven't attended before you know what a great event it is with live music, yoga, many exhibitors, raffle and more. Join us this year for a great day of awareness and fun!

 

REGISTER FOR
WILMINGTON WALK

PAC's Virtual Programming

 

Virtual Support Group

Date:  February 7th at 2:00 P.M. 

 

Topic: "Prepare to Care"

 

Presenter: Cheryl Greenberg, Life Coach and Volunteer, The American Association of Retired Persons

 

Join us for a discussion on tips and best practices for caregiving.

REGISTER

Click here to learn more about PAC's Virtual Support Group Sessions

 

Wellness Wednesday

Date:  February 21st at 2:00 P.M. 

 

Topic: "Dizziness with PD"

 

Presenter: Kathleen Lawrence, PT, DPT, Director of Rehab & Physical Therapist for Powerback Rehab and Rehab to You

 

Join us for a discussion on possible causes and treatment options for dizziness in PD.

REGISTER

Click here to learn more about PAC's Wellness Wednesday Webinars.

 

If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.

 

Local Community Programs

Support for Individuals Living with PD & their Care Partners

 

We have numerous support groups across the Carolinas. If you would like to find out about one near you give us a call at 980-245-2786 and a trained care advisor will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.

Movement Therapy Exercise

 

There are numerous movement therapy classes across the Carolinas. To join one of our in person classes or our virtual Yoga for Parkinson's class, click here to see all locations, dates and times. For more information on classes in your region, call our office at (980) 245-2786.  

 

  * Disclaimers *

 

We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.

 

 

*NEW CLASS ALERT*

Thanks to a grant from Crosland Foundation, we are continuing to offer “Yoga Tools for Caregivers” free of cost! This program is designed for a group of 12 caregivers who will meet twice a month. Please note, there are both in-person and Zoom class options offered for this program. The location is Pilates of Charlotte, 10701 McMullen Creek Parkway 2nd Floor, Charlotte, NC  28226 (the venue is generously donating their space). There will be yoga, meditation, mindfulness and group socialization.

 

If you are interested in participating in this program, please register with Aminta St. Onge at aminta@yogavibez.com. If you have any questions about the program, feel free to reach out to Aminta.

 

Available National Programs

 
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Dance and Sing for PD

 

Classes are now being held online.

 

To learn more,

click here.

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Rock Steady Boxing Headquarters

 

Offers classes online via YouTube!

 

To learn more, click here.

Pedaling for Parkinson's

 

Live Class Schedule:

 

M/W/F with Tom: 11:30 AM CT via Zoom

 

T/TH/SA with John: 8:00 AM  CT via Zoom

 

To join a class,

click here. 

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Poe for PD

 

Offers online Pilates classes!

 

For more information, click here.

 

Davis Phinney Foundation

Parkinson’s Exercise Essentials

 

To access the video content,

click here.

Stanford Neurosciences Supportive Care Program Virtual Exercise Classes 

 

To access the exercise class schedule, click here.

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Facebook Live Parkinson's Speech Exercises

 

Monday - Friday, 11:00 AM

To learn more,

click here.

 
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World Parkinson Coalition

 

For articles, webinars, etc., 

visit worldpdcoalition.org.

Smart Patients

Parkinson's Disease Community

In partnership with

American Parkinson Disease Association (ADPA)

 

For more information,

click here.

 

Parkinson's Community News

 

How to Communicate Your 5 Parkinson's Care Needs During a Hospital Visit

People with Parkinson’s disease (PD) are at a higher risk of hospitalization and face many challenges while in the hospital.

 

Hospital staff may not be familiar enough with PD to understand symptoms or realize they can worsen if you do not receive Parkinson’s medications on time. Careful preparation and clear communication can help minimize complications and recovery time.

 

Continue Reading On Parkinson's Foundation.

 

A new study indicates that tiny particles of polystyrene can promote the clumping of a protein involved in Parkinson’s.

 

Plastic waste is a growing problem, and as plastics break down the pieces can be problematic. A new study in Science Advances suggests that tiny plastic particles may be the latest environmental contributor to Parkinson’s disease (PD).

 

Continue Reading On Parkinson's Foundation

Plastic Waste Contaminants Could Promote Parkinson's

 

Regional and National Programming

 

Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.

 

The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of February.

 

For more information and to register for any of these upcoming sessions, click here.

 

Pacific Neuroscience Institute presents:

"Everything Parkinson’s Webinar"

 

Monday, February 5th at 12:00 P.M.

 

To join, click here. Use the following meeting credentials if prompted:

Webinar ID: 821 8048 1494

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Topic: "Therapies for Tomorrow: How Better Clinical Trial Design Leads to Better Treatments" 

 

Thursday, February 15th at 12:00 P.M.

To register, click here.  

 

Topic: "Navigating Insurance and the Healthcare System"

 

Thursday, February 8th at 12:00 P.M. 

To register, click here.

 

 

Topic: "Movement Disorders Research"

 

Thursday, February 1st at 12:00 P.M. 

To learn more, click here.

 

 

Local Studies & Trials

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Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)

 

The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this  study will require around 30-45 minutes of your time.

 

You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.

 

If you have any concerns about the study, you can contact:

PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu.

 

Acute Effects of Exercise on Autonomic Function

in Parkinson's Disease (PD)

 

Contacts:

  • Lizzie Gamwell, gamwellhe@appstate.edu
  • Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
 

LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).

 

If you are interested in learning more about Project Euphonia, click here.

 

Please contact project.euphonia@lsvtglobal.com with any questions.

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The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls. 

 

For more information, contact either of the following individuals:

  • Sandra Wilson, Research Coordinator - wilsosan@musc.edu 843-792-4616
  • Lisa Heidelberg, Research Coordinator - heidelbe@musc.edu 843-876-0829 

If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu.

 

Wake Forest Baptist Health is conducting a study that studies the effects of a wearable device on Parkinson's disease. 

 

To learn more about this study, click here.

 

For more information, contact Study Coordinator: Melanie Wilder at mwilder@wakehealth.edu or 336-716-1239.

 

PAC's Toll-Free Resource Line is here to Help!

LEARN MORE

Free Resource Line Answered by a Care Advisor

  • Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
  • You can call for PD related questions, resources, & referrals.
  • You can learn about PAC's cost-free programs.
  • Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.

For more information, click on the green "LEARN MORE" button.

 

How You Can Support PAC

Support PAC's Cost-Free Programs!

PAC offers free educational programs to the PD communities in the Carolinas! Consider making a donation so we can keep our programs cost-free to you!

 

DONATE
 

Volunteer with PAC

 

There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.

  • Board Member
  • Committee Member
  • Program Volunteer
  • Event Volunteer

For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.

Make Your Mark on Our Local Parkinson's Community!

VOLUNTEER
 

Follow PAC on Social Media!

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Did you know about our Motivational Mondays and Fact Fridays?

Every Monday and Friday we post motivational quotes and facts about Parkinson's disease on our Instagram and Facebook Stories.

 

We also post about some of our exercise programs and support groups across North and South Carolina on Wednesdays for our Spotlight Wednesdays. Each story stays up for 24 hours before disappearing the next day!

 

Where can I view Instagram Stories?

To view PAC's stories, just tap on our profile photo - it's a red and green tulip! If you like our story, you can send us a "heart" in the bottom right-hand corner! 

 

Where can I view Facebook Stories?

Similar to Instagram Stories, content shared to stories will appear at the top of the Facebook News Feed. To view a story, users simply tap the Parkinson Association Logo circle at the top of the app (if it has a blue circle around it). While viewing a story, users can also reply with a direct message to let us know if you liked our story!

 

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