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Programs, Events, & Resources for July 2024

 
 

HOLIDAY OFFICE CLOSURE

 

In observance of Independence Day, our office will be closed on July 4th and July 5th. Regular business hours will resume on July 8th. 

 

Have a safe and happy holiday!

 

 

Sincerely,

PAC Staff and Board

 

IT'S A WRAP! - 2024 MoveIt Walks

 

On behalf of the staff and board of Parkinson Association of the Carolinas, I want to thank all of you for participating in both our Wilmington and Charlotte MoveIt! Walks.

Thank you to our individual donors and our teams for all your contributions and hard work fundraising towards these events. Your efforts will allow us to continue bringing free, educational opportunities and programming to the Carolinas.

As with any successful event, it cannot happen without all of our volunteers behind the scenes. I thank all of you so much for your time and talent.

Of course I would be remiss if I didn’t thank our wonderful staff. Ke’yana Hatfield, our Program Director did a great job coordinating and running the Wilmington Walk, and Marissa Piasecki, our Associate Director, who is working remotely from Arizona, helped us in the background with needs we had throughout the day.

I want to thank our board members who showed up in various capacities to help with these events as well.

Be on the lookout for a save the date for our 2025 Walks. In the meantime, get out there and move it!

Ann Marie Worman

Executive Director

 
 

PAC's Virtual Programming

 

Virtual Support Group

PAC’s Monthly Virtual Support Group sessions are on summer break and will return in August! Save the date for August’s Virtual Support Group on August 7th at 2:00 PM. Be on the lookout for more information about this session.

 

Click here to learn more about PAC's Virtual Support Group Sessions

 

Wellness Wednesday

PAC's Monthly Wellness Wednesday webinars are on summer break and will return in August! Save the date for August's Wellness Wednesday virtual webinar on August 21st at 2:00 PM. Be on the lookout for more information about this session. 

 

Click here to learn more about PAC's Wellness Wednesday Webinars.

 

If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.

 

Local Community Programs

Support for Individuals Living with PD & their Care Partners

 

We have numerous support groups across the Carolinas. If you would like to find out about one near you give us a call at 980-245-2786 and a trained care advisor will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.

Movement Therapy Exercise

 

There are numerous movement therapy classes across the Carolinas. To join one of our in person classes or our virtual Yoga for Parkinson's class, click here to see all locations, dates and times. For more information on classes in your region, call our office at (980) 245-2786.  

 

  * Disclaimers *

 

We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.

 

 

Available National Programs

 
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Dance and Sing for PD

 

Classes are now being held online.

 

To learn more,

click here.

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Rock Steady Boxing Headquarters

 

Offers classes online via YouTube!

 

To learn more, click here.

Pedaling for Parkinson's

 

Live Class Schedule:

 

M/W/F with Tom: 11:30 AM CT via Zoom

 

T/TH/SA with John: 8:00 AM  CT via Zoom

 

To join a class,

click here. 

 
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Poe for PD

 

Offers online Pilates classes!

 

For more information, click here.

Davis Phinney Foundation

Parkinson’s Exercise Essentials

 

To access the video content,

click here.

Stanford Neurosciences Supportive Care Program Virtual Exercise Classes 

 

To access the exercise class schedule, click here.

 
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Facebook Live Parkinson's Speech Exercises

 

Monday - Friday, 11:00 AM

To learn more, click here.

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World Parkinson Coalition

 

For articles, webinars, etc., 

visit worldpdcoalition.org.

 

Parkinson's Community News

 

3 Positive Coping Skills That might Help Parkinson's patients

Degeneration is painful to witness, but even more painful to experience. The tasks one might previously have been able to tackle become difficult or impossible.

 

It’s not uncommon for those with a degenerative disease like Parkinson’s to experience changes to their memory and difficulty in staying focused. But it’s often the physical symptoms like tremors and stiffness that can make a patient feel like they’re degenerating.

 

Continue Reading On Parkinson's News Today

 

One of the first things you learn after receiving a Parkinson’s diagnosis is that exercise can be hugely important both for slowing the progression of your condition and helping with symptoms. But when it comes to starting a Parkinson’s fitness regime, it can still be daunting to know where to begin, and what you’ll be able to achieve.

 

Continue Reading on Parkinson's Europe

Parkinson's Fitness: 10 Steps to Becoming More Active with Parkinson's

 

4 Ways People with Parkinson’s Can Avoid Common Hospital Complications

For most people, being in the hospital is a stressful experience. People are usually sick or experiencing a health issue. For people with Parkinson’s disease (PD), their symptoms may get worse, and new symptoms, like confusion or thinking changes, can develop because of stress, infection, fatigue, sleep disturbances, surgery or new medications.

 

Continue Reading on Parkinson's Foundation

 

Regional and National Programming

 

Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.

 

Pacific Neuroscience Institute presents:

"Everything Parkinson’s Webinar"

 

Monday, July 1st at 12:00 P.M.

 

To join, click here. Use the following meeting credentials if prompted:

Webinar ID: 821 8048 1494

 

Topic: "All Ages, All Stages NC"

 

Thursday, July 16th at 10:00 A.M.

 

To register, click here.

 

Topic: "Considering Deep Brain Stimulation: What to Know and Expect"

 

Thursday, June 18th at 12:00 P.M.

To register, click here.   

 

The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of July.

 

For more information and to register for any of these upcoming sessions, click here.

 

Local Studies & Trials

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Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)

 

The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this  study will require around 30-45 minutes of your time.

 

You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.

 

If you have any concerns about the study, you can contact:

PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu.

 

Acute Effects of Exercise on Autonomic Function

in Parkinson's Disease (PD)

 

Contacts:

  • Lizzie Gamwell, gamwellhe@appstate.edu
  • Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
 

LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).

 

If you are interested in learning more about Project Euphonia, click here.

 

Please contact project.euphonia@lsvtglobal.com with any questions.

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The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls. 

 

For more information, contact either of the following individuals:

  • Sandra Wilson, Research Coordinator - wilsosan@musc.edu 843-792-4616
  • Lisa Heidelberg, Research Coordinator - heidelbe@musc.edu 843-876-0829 

If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu.

 

Wake Forest Baptist Health is conducting a study that studies the effects of a wearable device on Parkinson's disease. 

 

To learn more about this study, click here.

 

For more information, contact Study Coordinator: Melanie Wilder at mwilder@wakehealth.edu or 336-716-1239.

 

PAC's Toll-Free Resource Line is here to Help!

LEARN MORE

Free Resource Line Answered by a Care Advisor

  • Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
  • You can call for PD related questions, resources, & referrals.
  • You can learn about PAC's cost-free programs.
  • Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.

For more information, click on the green "LEARN MORE" button.

 

How You Can Support PAC

Support PAC's Cost-Free Programs!

PAC offers free educational programs to the PD communities in the Carolinas! Consider making a donation so we can keep our programs cost-free to you!

 

DONATE
 

Volunteer with PAC

 

There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.

  • Board Member
  • Committee Member
  • Program Volunteer
  • Event Volunteer

For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.

Make Your Mark on Our Local Parkinson's Community!

VOLUNTEER
 

Follow PAC on Social Media!

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Did you know about our Motivational Mondays and Fact Fridays?

Every Monday and Friday we post motivational quotes and facts about Parkinson's disease on our Instagram and Facebook Stories.

 

We also post about some of our exercise programs and support groups across North and South Carolina on Wednesdays for our Spotlight Wednesdays. Each story stays up for 24 hours before disappearing the next day!

 

Where can I view Instagram Stories?

To view PAC's stories, just tap on our profile photo - it's a red and green tulip! If you like our story, you can send us a "heart" in the bottom right-hand corner! 

 

Where can I view Facebook Stories?

Similar to Instagram Stories, content shared to stories will appear at the top of the Facebook News Feed. To view a story, users simply tap the Parkinson Association Logo circle at the top of the app (if it has a blue circle around it). While viewing a story, users can also reply with a direct message to let us know if you liked our story!

 

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