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Programs, Events, & Resources for July 2022
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JULYS' VIRTUAL SUPPORT GROUP AND WELLNESS WEDNESDAY CANCELED
Due to the unavailability of speakers, we have canceled our Virtual Support Group and Wellness Wednesday for July. Below you will find the information for August’s Virtual Support Group and Wellness Wednesday. We hope to see you then!
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Katherine DeWitt, OTR/L, CKTP, CSRS & Christie
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Virtual Support Group
Date: Wednesday, August 3rd at 2:00 PM
Topic: Occupational Therapy and Speech Therapy in Parkinsons Disease
Click here to learn more about PAC's Virtual Support Group.
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Michelle Hill, M.S. CCC-SLP
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Wellness Wednesday
Date: Wednesday, August 17th at 2:00 PM
Topic: Adaptive Communication Techniques & Assistive Devices
Click here to learn more about PAC's Wellness Wednesday Webinars.
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If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.
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PAC provides a FREE Dance for Parkinson’s class to the Parkinson’s community in Charlotte every Thursday, 11:00 A.M., at Christ Lutheran Church – Room Center 6 (4519 Providence Road Charlotte, NC 28226).
UPDATE: Classes for June and July will be presented via Zoom. We will be sending a link to the Zoom class via email. Be on the lookout for that!
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Support for Individuals Living with PD & their Care Partners
We have numerous support groups across the Carolinas, if you would like to find out about one near you give us a call at 980-245-2786 and a trained staff member will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.
Movement Therapy
To join one of our in person classes or our virtual Gentle Yoga class, click here to see all locations, dates and times. You’ll also find our recently updated list of regional exercise classes in this same section of our website.
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* Disclaimers *
As a result of the pandemic, many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.
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Parkinsons PWR!Moves Exercise Class
Wednesdays at 10am - First Class is FREE
PWR!Moves Excerises are:
- Research driven to STOP THE PROGRESSION OF PARKINSON'S DISEASE
- Specific Methods in guided cardio training, strength and functional training
- Specific exercises that help maintain and restore skills that have deteriorated and can interfere with everyday movements
- Targeted at multiple Parkinson's Disease symptoms
- Adaptable for all levels of disease severity
Located at: 4801 Chastain Ave, Suite 194, Charlotte, NC 28217
www.BTIrehab.com
For questions call 980-272-7105
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Available National Programs
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Dance and Sing for PD
Classes are now being held online.
To learn more,
click here.
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Rock Steady Boxing Headquarters
Offers classes online via YouTube!
To learn more, click here.
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Pedaling for Parkinson's
Live Class Schedule:
M/W/F with Tom: 11:30 AM CT via Zoom
T/TH/SA with John: 8:00 AM CT via Zoom
To join a class,
click here.
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Poe for PD
Offers online Pilates classes!
For more information, click here.
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Davis Phinney Foundation
Parkinson’s Exercise Essentials
To access the video content,
click here.
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Stanford Neurosciences Supportive Care Program Virtual Exercise Classes
To access the exercise class schedule, click here.
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Facebook Live Parkinson's Speech Exercises
Monday - Friday, 11:00 AM
Tuesday, 7:00 PM
To learn more,
click here.
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Smart Patients
Parkinson's Disease Community
In partnership with
American Parkinson Disease Association (ADPA)
For more information,
click here.
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Parkinson's Community News
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Expert Voices: Deep Brain Stimulation for People With Parkinson’s Disease
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In the this installment of our “Expert Voices” series, Parkinson’s News Today asked neurologist Michael S. Okun, MD, to answer some of your questions about deep brain stimulation (DBS).
Michael S. Okun is chair of neurology, professor, and director of the Norman Fixel Institute for Neurological Diseases at the University of Florida Health College of Medicine. The UF institute he co-founded with Kelly D. Foote, MD, is a one-stop patient-centered clinical-research experience for national and international patients seeking care. Dr. Okun has served as the national medical director/adviser for the Parkinson’s Foundation since 2006.
His research has been wide ranging and he is best known for his exploration and innovation in neuromodulation and deep brain stimulation. He has published more than 400 peer-reviewed articles, and his book “Parkinson’s Treatment: 10 Secrets to a Happier Life” was translated into more than 20 languages. His most recent books are “Ending Parkinson’s Disease” and “Living with Parkinson’s Disease.” Dr. Okun was recognized in a 2015 White House ceremony by the Obama administration as a Champion of Change for Parkinson’s Disease.
Continue Reading On Parkinson's News Today
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An oral medication that aims to slow the development of Parkinson’s has successfully undergone a human safety trial, with results published in the journal ‘Science Translational Medicine’.
Previous experiments on animal cells have shown that the drug, DNL201, may correct dysfunction in the cellular lysosomes (the cell’s ‘digestive system’). The drug targets an enzyme called LRRK2, which is implicated in Parkinson’s, and may therefore help to slow the condition’s progression.
Continue Reading On Parkinson's Life
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Human trial validates safety of potential new Parkinson’s disease drug
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StrivePD App to Monitor Symptoms Via Apple Watch Cleared by FDA
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StrivePD, a Rune Labs‘ app that collects motor symptom data for people with Parkinson’s disease via measurements recorded by an Apple Watch, has been cleared for use by the U.S. Food and Drug Administration (FDA).
“When people with Parkinson’s are prescribed new medications, adjusting how much to take and when to take it until they find something that works can be a lengthy process. StrivePD helps people to track their symptoms and improvements, accelerating the time to an optimal medication schedule,” Aura Oslapas, a member of Rune’s patient advisory board who helped to design the software based on her first-hand experience, said in a press release.
Continue Reading On Parkinson's News Today
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If you have a family member with Parkinson’s disease
(PD), you know that PD impacts not only
the person living with it but also their loved ones.
At some point, many family members wonder if they
could get Parkinson’s or pass it to their children.
Here are three things to know about Parkinson’s risk
if your family member lives or lived with PD.
Continue Reading on MJF Foundation
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Family Members and Parkinson’s Risk:
Three Things
to Know
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The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of July.
For more information and to register for any of these upcoming sessions, click here.
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MUSC Health presents: Deep Brain Stimulation
Speaker:Gonzalo Revuelta, MS, DO, FANA
Associate Professor of Neurology
Medical Director of Deep Brain Stimulation Program
Medical University of South Carolina
Thursday, July 7th at 12:00 PM
To register, click here.
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MUSC Health presents: Newly Diagnosed Parkinson’s Disease Virtual Orientation
Friday, July 15th at 2:00 PM
To register, click here.
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Pacific Neuroscience Institute presents:
"Everything Parkinson’s Webinar"
Monday, July 11th at 12:00 PM
To join, click here. Use the following meeting credentials if prompted:
Webinar ID: 821 8048 1494
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Topic: Virtual Checkup: How Telehealth Brings Parkinson's Care to You
Thursday, July 21st at 12:00 P.M.
Click here to learn more.
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Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.
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Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)
The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time.
You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.
If you have any concerns about the study, you can contact:
PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu.
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Acute Effects of Exercise on Autonomic Function
in Parkinson's Disease (PD)
Contacts:
- Lizzie Gamwell, gamwellhe@appstate.edu
- Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
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LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).
If you are interested in learning more about Project Euphonia, click here.
Please contact project.euphonia@lsvtglobal.com with any questions.
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The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete.
To access the survey, click here.
For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu.
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Wake Forest Baptist Health is conducting a study of light therapy in patients with Parkinson's Disease to improve sleep.
To learn more about this study, click here.
For more information, contact Study Coordinator: Carolina Burgos Aguilar at caguilar@wakehealth.edu or 336-713-2603.
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The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls.
For more information, contact either of the following individuals:
If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu.
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PAC's Toll-Free Resource Line is here to Help!
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Staff Answered Toll-Free Resource Line
- Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
- You can call for PD related questions, resources, & referrals.
- You can learn about PAC's cost-free programs.
- Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.
For more information, click on the green "LEARN MORE" button.
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Support PAC's Cost-Free Programs!
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Volunteer with PAC
There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.
- Board Member
- Committee Member
- Program Volunteer
- Event Volunteer
For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.
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Make Your Mark on Our Local Parkinson's Community!
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Support PAC When You Shop on Amazon!
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You shop. Amazon gives.
Consider selecting Parkinson Association of the Carolinas as your nonprofit on AmazonSmile, and Amazon will donate a portion of your purchase to PAC. Click here to get started.
Shop PAC's Amazon Smile Charity List
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Follow PAC on Social Media!
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