| Programs, Events, & Resources for March 2024 |
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Southminster and Parkinson Association of the Carolinas present a production of What I Didn't Say: A Journey Through Parkinson's April 30, 2024, 5:30-7:30 PM All are welcome! |
Join us to experience the play “What I Didn’t Say: A Journey Through Parkinson’s”
PD patients, caregivers, medical professionals, and everyone in between will relate to this profoundly honest story about the staying power of true love as they experience the highs and lows of one couple’s journey through Parkinson’s. After the 50-minute performance, you are invited to join in a discussion about Parkinson’s, the play, and what resources are available in your area. |
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FUNdraising Events for PAC |
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MoveIt! Walk Charlotte
Our 10th annual MoveIt! Walk Charlotte, NC will be Saturday, May 18, 2024 at Symphony Park. For those of you who have attended before you know what a great event it is with live music, yoga, many exhibitors, raffle and more. Join us this year for a great day of awareness and fun! |
| MoveIt! Walk to Wilmington We are excited to bring back our MoveIt! Walk to Wilmington, NC on Saturday, May 18, 2024 at Longleaf Park!! For those of you who have attended before you know what a great event it is with live music, yoga, many exhibitors, raffle and more. Join us this year for a great day of awareness and fun! |
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PAC's Virtual Programming |
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| Date: March 6th at 2:00 P.M. Topic: "The ABCs of Medicare"
Presenter: Patrick Burch, Certified NC SHIIP Counselor, Volunteer at AARP TRIAD Region Join us for a discussion on the basics of Medicare coverage. |
Click here to learn more about PAC's Virtual Support Group Sessions |
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| Date: March 20th at 2:00 P.M. Topic: "The Benefits of CBD" Presenter: Debra Myhr, PT, DBT, ATC, Physical Therapist Join us for a discussion on the health benefits of CBD. |
Click here to learn more about PAC's Wellness Wednesday Webinars. |
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If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you. |
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Support for Individuals Living with PD & their Care Partners
We have numerous support groups across the Carolinas. If you would like to find out about one near you give us a call at 980-245-2786 and a trained care advisor will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program. |
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Movement Therapy Exercise
There are numerous movement therapy classes across the Carolinas. To join one of our in person classes or our virtual Yoga for Parkinson's class, click here to see all locations, dates and times. For more information on classes in your region, call our office at (980) 245-2786.
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* Disclaimers *
We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor. |
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Thanks to a grant from Crosland Foundation, we are continuing to offer “Yoga Tools for Caregivers” free of cost! This program is designed for a group of 12 caregivers who will meet weekly. Please note, there are both in-person and Zoom class options offered for this program. The location is Pilates of Charlotte, 10701 McMullen Creek Parkway 2nd Floor, Charlotte, NC 28226 (the venue is generously donating their space). There will be yoga, meditation, mindfulness and group socialization.
If you are interested in participating in this program, please register with Aminta St. Onge at aminta@yogavibez.com. If you have any questions about the program, feel free to reach out to Aminta. |
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Available National Programs |
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Dance and Sing for PD Classes are now being held online. To learn more,
click here. |
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Rock Steady Boxing Headquarters Offers classes online via YouTube! To learn more, click here. |
| Pedaling for Parkinson's Live Class Schedule: M/W/F with Tom: 11:30 AM CT via Zoom T/TH/SA with John: 8:00 AM CT via Zoom To join a class, click here. |
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Poe for PD Offers online Pilates classes! For more information, click here. |
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Davis Phinney Foundation Parkinson’s Exercise Essentials
To access the video content, click here. |
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Stanford Neurosciences Supportive Care Program Virtual Exercise Classes
To access the exercise class schedule, click here. |
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Facebook Live Parkinson's Speech Exercises Monday - Friday, 11:00 AM
To learn more,
click here.
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| Smart Patients Parkinson's Disease Community In partnership with American Parkinson Disease Association (ADPA) For more information,
click here. |
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Parkinson's Community News |
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Long-term Tai Chi for Parkinson's may improve Cognition |
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Specifically, improved cognition was seen among people with the neurodegenerative disease after one year of the exercise program, according to study data. Conversely, at the six-month mark, taking part in the traditional Chinese martial art helped lessened daytime sleepiness in these patients as compared with those in the control group.
Practicing tai chi also was more effective at lessening nonmotor symptoms and improving sleep than was brisk walking, though these benefits did not reach statistical significance.
Continue Reading On Parkinson's News Today |
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Vaxxinity has entered into a research collaboration with the University of Florida to advance the development of vaccines for neurodegenerative diseases, including Parkinson’s disease. Funded by a grant from the state of Florida, the partnership aims to advance Vaxxinity’s lead immunotherapy candidates, designed to prevent and manage these disorders.
The company’s experimental vaccine for Parkinson’s, UB-312, has been tested in Phase 1 clinical trial (NCT04075318), initially in healthy adults and then in patients with mild-to-moderate Parkinson’s disease.
Continue Reading On Parkinson's News Today |
| Vaxxinity, University of Florida join for work on Parkinson’s vaccine |
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More palliative care and access to it needed for Parkinson’s, study finds |
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People with Parkinson’s disease and their caregivers need more timely information on what palliative care services are available and how to access them, along with more of such services, according to a review of published studies. Palliative care refers to specialized medical care for people living with a serious and incurable illness, with the goal of limiting suffering and optimizing quality of life.
Its researchers recommended that care management plans, tailored to an individual, be developed by a multidisciplinary team of healthcare providers with the involvement and support of caregivers, particularly before the onset of cognitive decline. Continue Reading on Parkinson's News Today |
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Regional and National Programming |
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Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details. |
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| The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of March.
For more information and to register for any of these upcoming sessions, click here.
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Pacific Neuroscience Institute presents:
"Everything Parkinson’s Webinar" Monday, March 4th at 12:00 P.M.
To join, click here. Use the following meeting credentials if prompted:
Webinar ID: 821 8048 1494 |
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| Topic: "Everyday Exposures to Parkinson's Environmental Connections to the Disease" Thursday, March 21st at 12:00 P.M. To register, click here. |
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Topic: "Nutrition and Parkinson's" Wednesday, March 6th at 3:00 P.M.
To register, click here.
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| Topic: "Palliative Care - Is it Right For Me?"
Thursday, March 7th at 12:00 P.M.
To learn more, click here.
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| Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)
The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time.
You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity. If you have any concerns about the study, you can contact:
PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu. |
Acute Effects of Exercise on Autonomic Function in Parkinson's Disease (PD)
Contacts: - Lizzie Gamwell, gamwellhe@appstate.edu
- Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
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LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices). If you are interested in learning more about Project Euphonia, click here. Please contact project.euphonia@lsvtglobal.com with any questions. |
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| The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls.
For more information, contact either of the following individuals:
If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu. |
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Wake Forest Baptist Health is conducting a study that studies the effects of a wearable device on Parkinson's disease.
To learn more about this study, click here.
For more information, contact Study Coordinator: Melanie Wilder at mwilder@wakehealth.edu or 336-716-1239. |
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PAC's Toll-Free Resource Line is here to Help! |
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Free Resource Line Answered by a Care Advisor - Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
- You can call for PD related questions, resources, & referrals.
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You can learn about PAC's cost-free programs.
- Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.
For more information, click on the green "LEARN MORE" button. |
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Support PAC's Cost-Free Programs! |
PAC offers free educational programs to the PD communities in the Carolinas! Consider making a donation so we can keep our programs cost-free to you! |
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Volunteer with PAC
There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities. - Board Member
- Committee Member
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Program Volunteer
- Event Volunteer
For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.
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Make Your Mark on Our Local Parkinson's Community! |
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Follow PAC on Social Media! |
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Did you know about our Motivational Mondays and Fact Fridays? |
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Every Monday and Friday we post motivational quotes and facts about Parkinson's disease on our Instagram and Facebook Stories. We also post about some of our exercise programs and support groups across North and South Carolina on Wednesdays for our Spotlight Wednesdays. Each story stays up for 24 hours before disappearing the next day! Where can I view Instagram Stories?
To view PAC's stories, just tap on our profile photo - it's a red and green tulip! If you like our story, you can send us a "heart" in the bottom right-hand corner!
Where can I view Facebook Stories?
Similar to Instagram Stories, content shared to stories will appear at the top of the Facebook News Feed. To view a story, users simply tap the Parkinson Association Logo circle at the top of the app (if it has a blue circle around it). While viewing a story, users can also reply with a direct message to let us know if you liked our story! |
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