Growing Connections and Raising Awareness
Our first-ever EmpowerED: Parkinson’s Education & Connection program in Myrtle Beach on June 20 was a wonderful day of learning, encouragement, and community. It was inspiring to see individuals living with Parkinson’s, care partners, families, and healthcare professionals come together to share experiences, gain valuable information, and connect with others who understand the Parkinson’s journey.
Throughout the day, attendees learned about mobility devices and dual tasking while walking, participated in a Yoga for Parkinson’s session, learned about the benefits boxing has on mobility and cognition, and discovered resources that can help them live well today with Parkinson’s.The most meaningful part of the day was the new connections and friendships made between people sharing similar experiences.
As we reflect on this special day, we’re also reminded of the importance of raising awareness about Parkinson’s disease and the symbol that unites our global community: the Red Tulip.
The Red Tulip is recognized internationally as the symbol of Parkinson’s awareness, representing hope, resilience, and the strength of everyone impacted by Parkinson’s disease. It serves as a reminder that through education, support, advocacy, and research, we can continue moving toward a brighter future for the Parkinson’s community.
PAC is proud to support that mission by providing educational programs, support groups, and movement opportunities that empower individuals and families throughout the Carolinas. Whether through an exercise class, educational webinar, support group, or community awareness event, every connection helps ensure that no one has to navigate Parkinson’s alone.
To learn more about the story behind the Red Tulip and the global movement to increase Parkinson’s awareness, click here.
Like the Red Tulip, our Carolinas Parkinson’s community continues to bloom through hope, resilience, and connection.
Tools for Your Journey: Education & Support Programs
PAC’s Virtual Support Group, Wednesday Webinar, and Wellness Wednesday programs will take a brief summer break in July and will return in August with more opportunities to learn, connect, and engage with the Parkinson’s community.
While our online programs won’t be meeting in July, PAC is still here to support you during the month of July. Our team remains available to provide support, answer questions, and connect you with resources through our Resource Helpline (866) 903-7275 and email pac@parkinsonassociation.org. We look forward to reconnecting with you in August and continuing to support you every step of the way.
Please note that the July YOPD Support Group will be meeting at 1:00 PM Eastern Time on Thursday, July 16.
Young Onset Parkinson’s Disease (YOPD) Support Group
Thursday, July 16, 2026
1:00 PM – 2:00 PM
Hybrid: PAC Office (2101 Sardis Road North, Suite 102, Charlotte, NC) OR Online via Zoom
The Young Onset Parkinson’s Disease (YOPD) Support Group explores connection, shared understanding, and practical support for individuals living with YOPD. Designed to address the unique challenges of navigating Parkinson’s at a younger age — including career, family, and long-term planning considerations — this welcoming space offers meaningful conversation, encouragement, and the reminder that you don’t have to face this journey alone.
Mark your Calendar for the 2026 Caring for Parkinson’s, Caring for You Signature Symposium on September 19, 2026, at Providence United Methodist Church. More information, including event details and agenda, will be available on our website later this month, and registration will open on August 1.
PAC is proud to partner with Smart Patients, an online community for patients and care partners affected by Parkinson’s community.
The online peer-to-peer support of the Smart Patients Parkinson’s Disease Community complements PAC’s support and resources, to make a difference in the lives of people with Parkinson’s and their loved ones.
Join Smart Patients, ask questions for yourself, and support others who can learn from your experiences.
Did you miss one of PAC’s virtual programs? You can catch up anytime by visiting the Parkinson Association of the Carolinas YouTube Channel, where selected recordings are available to watch.
Be sure to subscribe so you’ll be notified when new content is posted!
Need help registering for a program? Call us at (980) 245-2786 or toll-free at (866) 903-PARK (7275). Our team will be happy to assist you.
Find a Support Group
Living with Parkinson’s can feel overwhelming, but you don’t have to go through it alone. PAC maintains a listing of support groups across the Carolinas for individuals with Parkinson’s and their care partners. These groups provide a safe and welcoming space to share experiences, learn from others, and build meaningful connections within the community. Our new Young Onset PD support group that will meet monthly in a hybrid format, both in-person in Charlotte and online via Zoom! To learn more about a support group near you, call us at (980) 245-2786 or email gschultz@parkinsonassociation.org.
Free Resource Hotline
Need answers or support? PAC’s Free Resource Line is here to help. Staffed by a PAC team member Monday through Friday, 9:00 A.M.–4:00 P.M., this service provides reliable information, local resources, referrals, and details about our cost-free programs.
Give us a call at (866) 903-PARK (7275) or email pac@parkinsonassociation.org to connect with the support you need.
Get Moving with PAC: Movement Therapy Programs
Exercise and movement are powerful tools for living well with Parkinson’s. Regular participation can improve balance, flexibility, strength, and overall quality of life. PAC is proud to sponsor a variety of exercise and movement therapy classes each month, designed to meet you where you are and keep you moving forward. To join in, please contact the individual instructors listed below for class details and registration.
You can also explore the full list of PAC-sponsored exercise classes on our website.
Looking for even more options? Additional exercise programs are available throughout the Carolinas. Find classes in North Carolina, South Carolina, and online or call (980) 245-2786 or email gschultz@parkinsonassociation.org to learn more.
This month’s updates: There will be no Therapeutic Yoga for Parkinson’s with Aminta on July 4 in observance of Independence Day. Yoga with Aminta on Thursdays at 9:00 AM in Rock Hill, SC will be ending in July, with the final class taking place on Thursday, July 30.
Disclaimer: We ask that you practice caution when participating in all programs, particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.
PAC is excited to offer a new Yoga for Parkinson’s class in Myrtle Beach, led by instructor Betty. Designed specifically for individuals living with Parkinson’s, this class focuses on improving flexibility, balance, mobility, and overall wellness in a supportive, welcoming environment. No prior yoga experience is needed, and modifications are provided. Classes will be held Wednesdays at 2:30 PM at the Socastee Library, except on the 3rd Wednesday of the month which will be at 11:00 AM on Zoom in place of an in-person class. Participants are invited to move at their own pace, build confidence, and connect with others in the Parkinson’s community. Click here to register or call (980) 245-2786.
We’re halfway through 2026, and it’s the perfect time to check in on your movement goals and keep building momentum through the rest of the year!
The Moving with the PAC Challenge is here to help you stay active all summer long with easy-to-use tools like a step tracker, movement tracker, and helpful resources designed to support you in setting and reaching your personal goals.
Whether you’re just getting started or looking to stay consistent, this challenge is all about meeting you where you are and keeping you moving in a way that works for you.
Join the challenge today, and keep moving forward with PAC.
Share your progress with us by posting your movement tracker or a picture on social media and tagging PAC or sending us an email.
Make an Impact: Partnering with PAC
Hope Rises at Sunrise Fundraiser Supports the Parkinson's Community Across the Carolinas
The Parkinson Association of the Carolinas is incredibly grateful to Jeanne Kenley, and the team at Sunrise Senior Living, Brighton Gardens of Charlotte, for hosting the Hope Rises at Sunrise Parkinson’s Fundraiser on June 23.
Their generosity and partnership helped raise awareness and critical funds that support PAC’s free exercise and movement therapy programs, support groups, educational resources, and services for individuals living with Parkinson’s and their care partners across the Carolinas. Thank you for helping us create a stronger, more connected Parkinson’s community throughout the Carolinas.
PAC's Mission in Motion
Partnership with Jewish Family Services and the Levine JCC Charlotte: Parkinson’s Program Series.
On June 3, Gillian Schultz, PAC Program Director, had the pleasure of attending the first event in a series of Parkinson’s programs meant to empower those impacted by Parkinson’s disease through wellness, education, and community. Approximately 50 people attended the event to hear from Dr. Sanjay Iyer, Movement Disorder Specialist and medical director at Memory & Movement Charlotte. Dr. Iyer presented an overview of Parkinson’s, information about a variety of treatments available, and information about some exciting research developments. Stay tuned for information about the next program, happening sometime in August.
Empowering Our Parkinson's Community in Myrtle Beach
On June 20, PAC hosted the inaugural EmpowerED: Parkinson’s Education & Connection event in Myrtle Beach, bringing together individuals living with Parkinson’s disease, care partners, healthcare professionals, and community supporters for a day of learning, connection, and inspiration. The event welcomed 37 participants, and 14 sponsors and vendors, highlighting the growing need for Parkinson’s education and support opportunities in the Myrtle Beach community.
Designed to provide education and practical resources in a welcoming environment, EmpowerED offered attendees the opportunity to learn from experts, explore wellness strategies, and connect with others who understand the Parkinson’s journey.
The day began with a welcome from PAC and an informative presentation from the rehabilitation team at Tidelands Encompass Health Rehabilitation Hospital, who shared valuable insights on dual tasking, intensity-specific walking, and the benefits of therapy and exercise for people living with Parkinson’s disease. Attendees then had the opportunity to connect with sponsors and vendors before participating in an adaptive yoga demonstration led by Betty Durnin, CYT, C-IAYT. The morning continued with a presentation, Boxing Fights Parkinson’s, by Tanner Atkinson, highlighting the benefits of boxing-based exercise programs for individuals with Parkinson’s. The event concluded with lunch and connection, giving attendees time to build relationships, share experiences, and strengthen their sense of community.
A special thank you to our sponsors for their generous support:
- Platinum Sponsor: Supernus Pharmaceuticals
- Gold Sponsor: Acadia Pharmaceuticals
- Silver Sponsors: Abbott Pharmaceuticals and Amneal Pharmaceuticals
Beyond the Carolinas: Community Education Corner
In addition to PAC’s local offerings, we’re pleased to highlight educational webinars and resources from respected regional and national organizations. These free virtual sessions and events provide valuable insights into living well with Parkinson’s and often cover topics relevant to overall wellness, caregiving, and brain health.
Free Webinar: Caregiving and Dementia: Understanding the Challenges and Resources
📅 Thursday, July 16, 2026
🕑 11:00 AM to 12:00 PM | Online via Zoom
This webinar explores the emotional, physical, and practical challenges caregivers often face, while highlighting effective strategies, local and national resources, and ways to reduce caregiver stress and burnout. Participants will also be introduced to GUIDE (Guiding an Improved Dementia Experience).
Hosted by Centralina Area Agency on Aging
Free Webinar: Parkinson's or Something Else? Understanding Parkinsonisms
Thursday, July 16, 2026
12:00 PM | Online via Zoom
This webinar explores how experts distinguish Parkinson’s disease from vascular or atypical parkinsonisms like dementia with Lewy bodies or multiple system atrophy. Hear from an expert panel discussing how care for these conditions varies and answer your questions live.
Hosted by The Michael J. Fox Foundation for Parkinson’s Research
Free Event: Age Ready Series Help at Home: Understanding Home Health and Support Services
📅 Saturday, July 18, 2026
🕑 2:00 PM | HYBRID: Richland Library North Main, 5306 N Main St, Columbia, SC 29203 or Online
The University of South Carolina College of Social Work is partnering with local organizations to offer the Age Ready series, part of its aging-in-place research, to provide older adults and caregivers with accessible, practical information to support independence. This session will explore the difference between home health care, personal care, and other support services. You’ll find out how to choose quality help, understand costs, and get the right care when you need it.
Parkinson's Community News
Staying informed is key to living well with Parkinson’s. Explore the latest research breakthroughs, innovative therapies, helpful resources, and news that support every step of your Parkinson’s journey. You’ll also find opportunities to get involved in studies shaping the future of care. Click the headlines below to learn more and stay connected!
Trial testing safety of Parkinson’s vaccine gets $4M for 2 more years
Encouraging progress in Parkinson’s research continues as AC Immune receives a $4 million grant to extend its Phase 2 clinical trial of ACI-7104, an experimental vaccine designed to target the buildup of alpha-synuclein, a protein closely linked to Parkinson’s disease. This article explores how researchers hope the vaccine could slow disease progression, preserve function and independence, and potentially change the future of Parkinson’s treatment by intervening in the earliest stages of the disease. Read More
Free-water MRI builds more complete picture for Parkinson’s diagnosis
Promising new research suggests that combining advanced brain imaging with molecular testing may lead to more accurate diagnosis and monitoring of Parkinson’s disease. In this article, researchers explore how Neuropacs’ FDA-authorized imaging software can detect subtle brain changes associated with Parkinson’s, even in some individuals who test negative on standard biomarker tests, highlighting the potential for a more comprehensive approach to understanding and diagnosing the disease. Read More
Even after a Parkinson’s diagnosis, life goes on
A Parkinson’s diagnosis can bring feelings of fear, grief, and uncertainty, leaving individuals and families wondering what the future may hold. In this heartfelt article, care partner Jamie Askari shares her family’s journey after her husband’s early-onset Parkinson’s diagnosis and how they made the conscious choice to embrace hope, find joy in everyday moments, and continue living life to the fullest despite the many unknowns that come with Parkinson’s disease. Read More
In Memoriam: Honoring Our Parkinson’s Community
We recognize that the Parkinson’s journey touches not only those living with the disease, but also the families, friends, and loved ones who walk alongside them. In this space, we honor and remember members of our Parkinson’s community who have passed away.
This In Memoriam section is a way to celebrate their lives, share their stories, and acknowledge the lasting impact they’ve had on those around them. We invite families and loved ones to submit a tribute to recognize someone special who has been part of our community.
If you would like to learn more about including a loved one in this section, please contact:
Charlie Godfrey
Development Director
📧 cgodfrey@parkinsonassociation.org
📞 (980) 245-2786
We are honored to help preserve and share the memories of those who will always remain part of the Parkinson Association of the Carolinas community.
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Stay Connected with PAC Online
How can I engage with PAC on social media?
Follow PAC on Facebook, Instagram, LinkedIn, or X (formerly Twitter) for the latest updates on Parkinson’s disease and how PAC supports you. Click Follow or Like so PAC’s posts appear in your newsfeed. When you see a post, let us know you enjoyed it by tapping the thumbs-up (Facebook) or heart (Instagram) icons.
In addition to regular posts, PAC also shares Stories on Facebook and Instagram. These appear at the top of your feed. Look for PAC’s tulip icon, tap to view the story, and click the heart to show your support. You can also send us a message to share your thoughts—we’d love to hear from you!
